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Ander C.
Republican FL 4

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  • Honoring the Life of the Beloved Visionary and Advocate Suzanne Rosenthal

    by Representative Ander Crenshaw

    Posted on 2013-02-14

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    CRENSHAW of florida in the house of representatives Thursday, February 14, 2013 Mr. CRENSHAW. Mr. Speaker, I rise today to celebrate the life of the beloved visionary and advocate, Suzanne Rosenthal who passed away on Sunday, February 10, 2013. Suzanne was a fearless, determined and courageous woman who turned her diagnosis of Crohn's disease in 1955 into a legacy that has gone on to help hundreds of thousands of people over the years. She dedicated her life to spreading awareness about Crohn's disease and ulcerative colitis, supporting and educating patients and funding research to find cures. In 1967, along with her husband, Irwin M. Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, MD, she founded the National Foundation of Ileitis and Colitis, now known as the Crohn's & Colitis Foundation of America (CCFA).

    Suzanne held many key volunteer positions at CCFA. She was a former president of the Greater New York Chapter and served as National Chairperson of the Board from 1987 to 1991. She served as Chairperson Emeritus of CCFA's Government Affairs Task Force and champion in all advocacy efforts of the Foundation. Suzanne received CCFA's distinguished Public Policy Pioneer Award for her tireless advocacy efforts on behalf of IBD patients everywhere. The award was presented at CCFA's First National IBD Advocacy Conference, held in Washington, D.C. in June [[Page E155]] 2003. Keeping in line with her tireless support of IBD patients and their families, as President of the Greater New York Chapter, she initiated the support group model that has since been implemented as CCFA's national network of support groups.

    Suzanne was also the Founder and past President of the Digestive Disease National Coalition (DDNC). The DDNC comprises more than 32 patient groups and professional societies, representing the research and healthcare legislative interests of people who suffer from digestive disorders. In addition, she was an active leader in many digestive disease-related health forums and committees, holding the following positions: member of the Advisory Council, National Institute of Diabetes & Digestive & Kidney Diseases, National Institutes of Health; chair of the Workgroup on Education of Public and Patients and Supporting Resources of the National Commission on Digestive Diseases; and member of the Advisory Committee and Executive Committee of the National Digestive Disease Information Clearinghouse.

    Under Suzanne's direction, CCFA and DDNC have been consistent and effective voices for digestive disease research within the National Institutes of Health, including funding for the National Institute of Diabetes and Digestive and Kidney Diseases, and other related institutes and agencies within the Public Health Service. She is recognized by the research community, CCFA and the DDNC as a loyal ally and a valuable resource in creating public awareness of digestive diseases, as well as a strong partner in the effort to develop new treatments and improve medical understanding of these conditions.

    Most recently, with Suzanne's guidance, I worked along with CCFA to establish the Congressional Crohn's and Colitis Caucus. In memory of Suzanne's contributions, CCFA and DDNC will continue to work together to improve the lives of patients with digestive diseases.

    Mr. Speaker, I ask you to join me in this very special congressional salute to this leader and advocate, Suzanne Rosenthal.


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